Device Orientation

Back in the day and Pete reflecting on self-management and why it may have a long-way to go…

Back in the day and Pete reflecting on self-management and why it may have a long-way to go…

Back in the day…Pete reflecting on self-management

Back in the day and Pete reflecting on self-management and why it may have a long-way to go…

Back in the day…

I remember when when I first worked on the NHS Expert Patients Programme (EPP) in 2001 (It was a selfmgt programme for all people living long- term health conditions and here is a really good video, which explains what it was and how it worked) Two years ago, it celebrated its 20th Birthday and here is a video celebrating it 

I was telling a GP about the EPP and it was FREE and available for all he’s patients. He said “I could think of one patient that would benefit.” After he walked off I looked at Dave, who I was working with at the time and we laughed. He could ONLY think of one patient who would be suitable. We knew each GP surgery has a long- term health conditions register rammed with patients.

Myself and Dave went and had a cuppa and talked it over. If other GP’s were going to be like this one, then getting the EPP off the ground was going to be bloody difficult. It was GP’s had this doctor knows best attitude. We also wondered if other healthcare workers had the same way of thinking and to our surprise and the answer was yes. 

We did meet a friendly GP and he explained to us both what the medical model was and how it was main structure in healthcare. Selfmgt was never taught in medical schools. 

So 20 years on and has anything changed? 

  • In some areas it has but sadly in many places it hasn’t. 
  • Most healthcare workers have heard of the term selfmgt, but I’m not sure they fully understand its meaning or purpose.
  • Most med schools still haven’t included a selfmgt model in their curriculums.
  • There still seems to be a doctor know best attitude for LTC. I noticed that a lot in how my prostate cancer is managed. 
  • Healthcare workers are becoming more aware of being more like health coaches for persistent pain and long-term health conditions.
  • There are more Lay selfmgt coaches like myself here in the UK & around the world, but we need many more.
  • IASP recognised 4yrs patients need to be involved within their organisation, hence the development of Global Alliance of Partners for Pain Advocacy - GAPPA

Summing up…

  • There still needs to be a massive shift in healthcare workers manage people with with long-term health conditions. 
  • Selfmgt needs to be taught in schools as a life skill.
  • Will the above change in my lifetime or yours - NOPE

Thanks for reading and as always, please leave a comment, as I’m still eager to learn from others.